CHD Awareness Quilt Project

"The Congenital Heart Defect Awareness Quilt Project was created to promote greater public awareness of Congenital Heart Defects (CHD), while honoring the strength, courage, and commitment of all those born with a CHD and their families."

"The Congenital Heart Defect Awareness Quilts are a series of quilts, with each quilt honoring 42 individuals with CHD. The quilts are being constructed of heart blocks, with each block being dedicated to a child or adult effected by Congenital Heart Defects."

After Nathan's open heart surgery in June 2008 I had was given the information to their website: CHD Quilt

I submitted it and hadn't thought anything about it until an email came from them this morning with Nathan's completed block! It fits him so perfectly. I love the BYU helmet because of Nathan's obsession for his BYU blanket that he packs around with him like Linus (the Peanuts character).

What a great way to honor those with congenital heart defects!

What Goes Up Must Come Down...

And what goes in Nathan must come out...

On Nathan's timetable.







Which is why we are again at Primary Children's in the waiting room by the OR having operation number 20.

Oh Nathan, why did you have to pull through this last surgery so well and with such a zest for life and energy that you have never had before? Why did you have to be a normal 2 year old and do a face plant into the carpet last Tuesday? Were you just trying to prove to the ENT's that you are the boss? Or did you know that this has never happened to a child under all of the current ENT's care where they have to replace the whole distractor? Only 2x prior in Dr. Muntz's memory has a child had to have a distractor replaced and these were only the top pins. Once on a newborn and once on a 7 year old. You have again outdown them all!

I just wish that you weren't so gosh darn happy about it!