No one should ever have to go through this many surgeries in their life, especially for someone only 24 months old. Nathan is sure one tough little guy!
Yesterday afternoon Nathan had his second jaw distraction. I've been told by the ENT that this has only happened 1 other time in the last 20 or so years here at Primary Children's. The "expert" of these surgeries in Minnesota has only seen a second surgery a dozen or so times in his practice. The surgery lasted about 5 hours and Nathan faired very well during the surgery. He was taken to the Pediatric Intensive Care Unit for observation and more controlled pain management. Nathan's airway showed some anomalies, but nothing that could be fixed. With all of Nathan's airway issues, he has to be watched very carefully for the first 24 hours to make sure that his body is ok and that his lungs don't fill with fluid as that has happened many times in the past.
Primary Children's serves the intermountain west. Unfortunately although they have expanded another 14 beds in the PICU, that is not nearly enough to service 5 states! They had overbooked the PICU by 4 children with 7 more admits coming through the doors. Since Nathan was considered one of the more stable kids, they sent him down to the children's surgical unit. Don't get me wrong, I'm ecstatic that he is doing so well.... but his pain management was more controlled in the PICU than on the surgical unit floor. The surgical unit is also double booked because of all of the RSV kids and H1N1 kids. These rooms are so little and having 2 kids in them just doesn't work. The surgical unit nurses are running all over the place because they have 5 kids each to work with. Its just not a happy situation for anyone. Nurses are stressed, parents are wanting privacy and more attention for their kids, and the kids are feeding off of each other's crying. What a day!
Nathan doesn't want anyone to touch him except Mom. Even then for a while this morning he didn't want even me to hold him. He is being VERY PROTECTIVE of his face. I can't blame him. I'm sure it is awful! He has slept most of the afternoon and seems to generally be a little more peaceful. He's having a hard time finding a good spot to rest his head. As a baby the distractors were closer to his face and the pins were not so prominent. This should be very interesting for the next two months!
2 days down.... at least 10-12 to go!
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